教育王國
標題: 自閉症 - 三歲前確診及治療而最後可醫好的請進 [打印本頁]
作者: 陳爸爸 時間: 11-12-23 18:54 標題: 自閉症 - 三歲前確診及治療而最後可醫好的請進
請問有否家長真的在兒女三歲前確診而又真的能經一段時間針灸及行為治療後能使子女回覆同一般小孩沒有大分別呢(在眼神交流, 主動社交溝通-最少同自己父母方面, 及認知方面的範疇)?
如果有的話, 可否在此分享你們的成功經驗及可否PM治療機構及針灸醫師的contact給好多現在仍如迷途羔羊的父母如我呢?
Million thanks!
作者: pocoyo123 時間: 11-12-23 20:41
相信呢度家長都知, 自閉症係不會有醫好呢回事,只有密集式訓練令到徵狀減低,從小訓練, 成效係好好多,小兒也是自閉, 但現在和正常小朋友無異, (約有90%正常),
本人未同亞仔試過針灸, 不願置評.
小兒兩歲評估自傾, 入讀I位, 4歲評估自閉, 入讀S位, 現在6歲, 在普通幼稚園讀K3, 明年上主流小一, .
4年來也是密集式訓練, 努力加不怕失敗, .
作者: LPYdad1 時間: 11-12-24 00:41
本帖最後由 LPYdad1 於 11-12-24 02:04 編輯
Dear 陳爸爸 and pocoyo123,
This topic is wrongly set.
Autism is a group of some development syndrome, not a disease.
U gals probably have attended many seminar , consultant & talks w/ professionals. Particularly, I remember a seminar from a HKU genetic top professor who attend TV shows a few times talking about autism. She believes autism is highly related to genetic factor, similarily meaning there is no cure and no effort to recover fully. She has said that her intelligence would pick up a kid's autisitc feature even such kid is fully recovered.
That is bias.
It is also bias if you ask autism is clueable (like ad from little G)
Pls always remember autism is a collection of development disorder. You should not consider a cure, it is already a kind of discrimination and out of question I guess.
If your kid has overcome all those delay or disorder, of course, he/she is fully recovered. Considering how many % u think yr kid is fully recovered, I think this is a subjective Q. Other than all those development items with weights, it also relates to society view and cultural aspects. Each gp has diff standard. Better leave u yrself to think of.
For 陳爸爸, pls dont say 迷途羔羊的父母, no one expects it could happen to a family. Also, info about autism is too segmented, not in HK but also in worldwide. There seems not any single institution is willing to draw an integrated approach from medication, treatment, therapy, class/schooling aginst play & course, parenting, etc.... From pregancy, laboring, brain development, disease & pollutant ag. genetic factors, scheduling, degree of intervention & alternatives, assessment, etc, etc...
If u really want to hear my exp, pls let me know, but it's damn long.
(Hahaha.. Just using my teeny tiny knowledge and exp to start a seminar, it would already take about 6-12 mths I guess, 3 hr each wk??? But I am just a parent. Again, Hahaha...)
May God bless u and yr family
作者: 陳爸爸 時間: 11-12-25 01:44
Dear pocoyo123 & LPYdad1,
Thank for all of your prompt reply!
雖然自閉症並不是一般大眾所理解的病, 而係因腦部發展異常而引起的發展及行為Disorder, 如果此disorder能影響一個普通人過正常生活, 我都覺得應以此為病, 就如思覺失調或抑鬱症，到底是不是病呢? 如果唔當佢係病, 咁Doctor就無須去研究點去治療, 此亦不是有ASD or A features子女的家長之福, 其實去診斷有冇自閉, 初期都主要係靠一系列的問卷同行為觀察, 所以如果在治療後再重新做一次問卷同行為觀察而沒有任何Autism features(在語言, 社交同認知方面), 如普通人般過翻正常生活, 我都會當係治好了, 我自己就認為不能因西醫一句"自閉無得醫", 即使子女已train up 同治療到同普通小孩無分別都仍當他有自閉(即使完全正常的小孩都有好多會做出如自閉小孩的行為或其他怪異行徑, 對嗎?), 否則家長同子女永遠都只有活在此陰影下了
在西醫的角度裏, Autism 的確無法醫治, 不過我覺得好多西醫裏解決唔到的病, 中醫都能有出乎意料的效果, 所以希望有成功經驗的家長可以在此sharing，為剛發現子女係A的家長從悲傷及迷茫中cheer up , 為正盡一切辦法積極地希望幫助到自己子女的家長(including me)燃點希望, 努力加油!
作者: Reddish 時間: 11-12-25 22:49
小兒3歲時入s位, 有做密集訓練, 現在情況很好, 評估時已經話佢跟到同齡小朋友入小學, 但佢依然有小小怪行為, 老師話每個小朋友都有自己性格, 只要繼續觀察, 不需特別緊張.
但我都覺2-5 歲是黃金學習期, 記性好, 脾氣易控制, (以前給佢一粒糖便做晒所有訓練), 不易分心, 而家佢大左, 反而要求玩完才做功課.
作者: 陳爸爸 時間: 11-12-26 01:01
Hi Reddish,
This for your reply! 的確令人鼓舞, 請問除左密集訓練外, 有否做針灸治療呢?
作者: overcomer 時間: 11-12-27 01:45
要update吓。瑪嘉烈精神科講座話有3%至25%的自閉兒能痊癒。autismawakening網頁話有10-20%的人，從前被評為自閉，之後就再評就唔係了。d傳統觀念，好難改。自己keep住睇d外國研究啦，update d
作者: hcily 時間: 11-12-27 02:17
自閉症的評估其實有主觀成分，所以所謂治癒，也有主觀元素。但正如很多這裡的家長提出過，名稱不是最重要，最重要是孩子的情況，不必執着他是否治癒，只要他能正常生活便成。我常常想，只要孩子將來有獨立能力，能照顧自己，他要怎樣過他的生活是他的權利，不必太理會別人的看法。所以我不會認為所有的自閉特徵都要消除，那是他獨特的部分。我兒子有點像「神探阿蒙」，看不慣東西位置不四正，總會出手移正。只要他不是發脾氣，又不是指使人做，這種小執着實在無傷大雅。我集中處理的是會影響他生活的東西，例如社交及溝通，還有專注力。
作者: overcomer 時間: 11-12-27 13:41
痊癒O既意思咪就係能正常生活囉。
睇吓呢篇 "自閉症能痊癒嗎?"
http://www.autismawakening.org/D ... utism40073665371334
作者: overcomer 時間: 11-12-27 13:55
本帖最後由 overcomer 於 11-12-27 14:27 編輯
該文章的英文版: http://www.msnbc.msn.com/id/30645770/
"Study suggests kids can ‘recover’ from autism"
Some content:
Previous studies have suggested between 3 percent and 25 percent of autistic kids recover. Fein says her studies have shown the range is 10 percent to 20 percent.
Most of the formerly autistic kids got long-term behavior treatment soon after diagnosis, in some cases for 30 or 40 hours weekly.
Many also have above-average IQs and had been diagnosed with relatively mild cases of autism. At age 2, many were within the normal range for motor development, able to walk, climb and hold a pencil.
Significant improvement suggesting recovery was evident by around age 7 in most cases, Fein said.
Leo Lytel, 9, pauses while playing at his home in Washington. Leo was diagnosed with autism as a toddler. He was undiagnosed at age 9.
自己上去個網到睇。雖然之後康復的%不高, 不過係有人recover。話自閉冇得醫, 係唔update.
瑪嘉烈個講座都係話3-25%能痊癒, 且都係高功能, 正常IQ, 正常理解力, 很早就有TRAINING 那批人。
作者: musicboxjoanne 時間: 11-12-27 16:41
真是一個令人鼓舞的消息
作者: autunmbb 時間: 11-12-27 18:13
是的，真係要update下自己，唔好比醫生話無得醫就影響自己的心情。講真呀，『普通人』都會有不同的性格，只要我地的小朋友可以正常生活就可以。
作者: LPYdad1 時間: 11-12-27 22:48
Dear hcily, overcomer and autumnbb,
Your explanation is very good and objective.I even dont want to say my son or any kid is 100% recovered because this topic is already subjective in setting. I hope people after reading your comments in here could understand and dont get bias on this.
作者: myson727 時間: 11-12-27 23:30
overcomer 發表於 11-12-27 01:45 
要update吓。瑪嘉烈精神科講座話有3%至25%的自閉兒能痊癒。autismawakening網頁話有10-20%的人，從前被評為 ...
好同意要update下自己,特別留意多D外國網站,舊有觀念可能過時了.
好似我仔接受左"生物療法" Bio-medical treatment, 1.7yrs, 己經越離越正常, 昨日同佢入左兩日camp, 同其他小朋友一齊玩, 玩得不知幾開心.
作者: Reddish 時間: 11-12-28 00:45
因為針灸醫生技術差參, 小兒年幼時我沒有給他做過針灸, 怕他受傷也不會表達, 到佢五歲後, 我帶佢去做, 初時見佢好似反應快左, (情況大概如足夠睡眠, 很肯回答.) 但只針了三幾次, 因沒有明顯改變, 加上亞仔話好痛, 我便沒有再去了.
作者: LPYdad1 時間: 11-12-28 01:02
Some time ago...
There is an eye doctor. He married a very pretty girl. Unfortunately, this girl has a very high degree of short-sightness. And at that moment, the only remedy is wearing very thick with many circle glass at that level of technology. Therefore, her beauty was blocked by her glass in front of people. No one knew she was such a beauty.However, since her husband was an eye doctor, he searched for latest technology for possible remedy.
A year later, a thin and non-circled glass was invented. As an eye doctor's wife, this pretty woman was the pioneer of wearing such glass in front of people. When the first day she wore such glass in public, all people was surprised with his wife's beauty.
The eye doctor was happy. At the same time, he wondered if there was any method for his wife to get rid of that glass. Ten years later, the contact lens was invented, his wife again was the first group of people trying such lens. And again, everyone is surprised that his wife was such a beauty without glass.
The eye doctor was happy in the beginning. But there is still a thorn in his heart because he could easily see there is slight circles around his wife's eye balls when she was wearing the contact lens. More sadly, his wife cannot wear the contact lens at 24 hours, so he still saw her wearing glass at home. So, the eye doctor kept searching.
Ten more years passed by, the lasik technology developed. Though the eye doctor and his wife were no longer young, he still wanted his wife to have her beauty perfection. So, his wife was again the pioneer of lasik technology. Fortunately, the surgery went very well. His wife's short-sightness was removed. The eye doctor now could see his wife not wearing glass in every minute.
One day, when the eye doctor slept with his wife and looked very closely to his wife's eyes, he found there was a teeny tiny scar in his wife's pupil, perhaps left after the surgery. The eye doctor was sad. He decided to search for even more advanced technology to remove her scar. Twenty more years passed by, the stem cell technology was invented. The latest technology now could take a human cell tissue to grow into any organ in an animal's body and then i mplanted the organ back into such human. The eye doctor heard such technology and again asked his wife to do such surgery to remove her scar even though they were old already. Also, the surgery needed to take all their savings, required a few years for implantation and a painful surgery. Most importantly, his wife will need to stay in hospital with bandage covered with her eye for a year. The eye doctor begged and begged. His wife at last agreed.
A few years passed, the implantation and surgery were made. One more year passed by then, the eye doctor's wife finally removed her bandage after the stem cell surgery, however, her husband was no longer able to see...
作者: 陳爸爸 時間: 11-12-28 01:39
Hi myson727,
Thanks for your reply, what kind of bio-treatment your son taking? Would u mind to share more on that?
作者: jjcow 時間: 11-12-28 06:04
本帖最後由 jjcow 於 11-12-28 06:05 編輯
LPYdad1 發表於 11-12-28 01:02 
Some time ago...
There is an eye doctor. He married a very pretty girl. Unfortunately, this girl has ...
完全明白。
作者: kelvin_hmlau 時間: 11-12-28 10:13
如果療愈=過正常人生活=>絕對可能! e.g. 我個同事, 有工, 有家, 有個女. 不 斷打機砌高達.
如果療愈=變成普通人=>難! pocoyo 說的做到9成, 已經係超水準表現.
如果療愈=變成好人(服務社會)=>絕對可能! e.g. Tempo Grandin.
如果療愈=變成叻人(變色龍)=>難! 好似唐唐果d 對有錢人一套說話, 對中產一套說話, 對低下階層一套說話, 識做show.
作者: myson727 時間: 11-12-28 12:29
陳爸爸 發表於 11-12-28 01:39
Hi myson727,
Thanks for your reply, what kind of bio-treatment your son taking? Would u mind to sha ...
按我有限的認識:
生物療法先要驗出影響小朋友發展的"原因",例如
1) 重金屬 (我仔水銀超8倍,鉛超6倍)
2) 有無腸痰 (SIgA), 惡菌 (我仔腸的抗體指數SIgA 394 - 常人最多200)
3) 食物敏感 (我仔對奶,蛋,花生敏感)
4) 身陳代謝系統問題 - (我仔缺B12, B6)
5).............
最好找DAN DOCTER睇下.
作者: yaniolee 時間: 11-12-29 17:22
其實真係睇你點睇,如果你嘅定義set起能自我照顧,甘當然可以當係痊癒
作者: overcomer 時間: 11-12-30 00:17
呢到個個父母都希望子女能自我照顧，正常生活，唔駛倚賴人，開開心心，已好滿足了，呢到有邊個會要求子女能言善辨，講嘢好有説話藝術，飛黃謄達o架？
作者: 陳爸爸 時間: 11-12-30 00:25
回復 pocoyo123 的帖子
HI pocoyo123,
may I know what kind of "A" features your son have when he was 2 years old?
- No speech even single word with meaning (like papa, mama)?
- or can talk but just like Parrot speech?
- % of eye contact with you (0-100% ? i think this one must be bingo for most of the kid with A features)
- always running or walk around without any direction or target (like 遊離浪蕩)
- zero response when call his name
because 90% back to normal i think is already no different with a normal kid, so really want to know your son initial situation when at his 2 years old so can compare how big the improvement he got.
thanks!
作者: 陳爸爸 時間: 11-12-30 00:35
回復 yaniolee 的帖子
Hi yaniolee,
i think the definition of recovery for me is not only "自我照顧", i think 在眼神交流, 社交溝通 (同自己父母 & friend 方面一般社交溝通 - 不一定要好主動, 因一般人都唔一定好主動同 social的對嗎?), 及認知學習方面的範疇, 表面睇都同一般人no different
作者: pocoyo123 時間: 11-12-30 01:05
陳爸爸:
小兒兩歲時的情況, 小兒到CAC評估時, 年齡2歲半, 我記得如下:
--說話有單字, 如: 要, 不要, 好, 唔好, 去, 唔去, 車, 波, 爸, 媽...約20個, (但佢對數字&英文字母好敏感, 1-50, A-Z可以認到&讀到)
--問一些簡單問題會答, 很小鸚鵡式說話.當時評估言語遲緩1年半.
--眼神接觸約有20-30%, 但不太持久(當時心理學家話佢有小量眼神接觸所以評估為自傾喎)
--沒有遊離浪蕩這習慣, 只有自己想去某處, 但又唔識表達, 就自己行左去
--叫佢會望下你, 有反應, 玩具或食物會理下人, 否則, 無興趣唔再理人
其實小兒兩歲到現在分別真係好大, 雖然佢現在說話表達能力有時都係詞不達意, 但佢現在會知道自己生活在一個社會裡, 自己思考自己的問題, 有朋友, 有家人, 不再只係活在自己的世界裡
作者: BKVIP 時間: 11-12-30 11:38
pocoyo123，看見你兒子的進步實在令人鼓舞，我對我兒子也是充滿希望的。不同的只是我兒子的情況比你兒子2歲多時更差些。
現在他剛3歲，由當初5% 眼神交流升至現在80%(只限家人)，對外人眼神只有10%左右。他會回答好不好/是不是的問題，但當你問爸爸在哪？答不到。現在他還是重覆別人的說話，廣告內容，我真的很想他可以如常人般對答。
請問你大量家居訓練是如何大量？每天要做多久，並維持了多久才見成效？
作者: wingszewinnie 時間: 11-12-30 12:56
回復 pocoyo123 的帖子
本人小朋友都是評估有自閉傾向, 今年3歲. 請問如何密集式訓練?? 可否pm我. 大家交流下
[email protected]
作者: shirleycnf 時間: 11-12-30 15:03
我小朋友約3歲時比醫生話有自閉傾向, 我安排了i位及一些遊戲治療+幼兒訓練給他, 最近(約1.5-2年後) 去油麻地專科評估, 醫生話已沒有自閉傾向亦沒有阿示保加, 我記得我當年好傷心, 在家裹偷偷落淚
. 所以我是明白你的心情, 請你不要灰心. 大家一齊努力!
作者: 喜樂寶寶 時間: 11-12-30 15:36
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作者: pocoyo123 時間: 11-12-30 16:31
bkvip：
小兒進步得最快應該是入讀S位後，每天學校有小組或個別堂，我們一定會出席，每天放學后也會出去外面上其他小組或個別訓練，每天吃完飯後都會用一個多小時以上重溫學校的訓練，或排圖咭，小肌訓練，rdi訓練，間中也有做中英數等練習，基本上每天也做到十點幾先睡覺
作者: awah112 時間: 11-12-30 22:55
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作者: bbpigbb 時間: 11-12-31 13:50
Hi myson727
我都打算帶仔仔去驗，但又唔知邊個e生好，能否PM這個e生資料給我，many thanks!
作者: 陳爸爸 時間: 12-1-1 00:21
shirleycnf 發表於 11-12-30 15:03
我小朋友約3歲時比醫生話有自閉傾向, 我安排了i位及一些遊戲治療+幼兒訓練給他, 最近(約1.5-2年後) 去油麻 ...
HI shirleycnf,
may I know what kind of "A" features your 小朋友 have when he/she was 3 years old?
- No speech even single word with meaning (like papa, mama)?
- or can talk but just like Parrot speech?
- % of eye contact with you (0-100% ? i think this one must be bingo for most of the kid with A features)
- always running or walk around without any direction or target (like 遊離浪蕩)
- zero response when call his name
作者: 陳爸爸 時間: 12-1-1 18:16
Hi awah112,
may I know what kind of "A" features your son as well?
作者: awah112 時間: 12-1-1 21:34
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作者: 陳爸爸 時間: 12-1-2 18:19
Hi awah112,
may I know how old is your son now? 在你兒子兩歲時除語言遲緩外仲有冇以下情況?
- No speech even single word with meaning (like papa, mama)?
- or can talk but just like Parrot speech?
- % of eye contact with you (0-100% ? i think this one must be bingo for most of the kid with A features)
- always running or walk around without any direction or target (like 遊離浪蕩)
- zero response when call his name
- 常自轉, 玩開關門等自我刺激行為
作者: 陳爸爸 時間: 12-1-2 18:32
Hi pocoyo123,
如你描述你小兒在兩歲半CAC的情況, 真的不太差, 只缺乏眼神交流, 爲何4歲要轉S位呢? 是否大小肌的問題?
作者: awah112 時間: 12-1-2 18:53
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作者: pocoyo123 時間: 12-1-2 20:35
陳爸爸:
小兒當年評估時, 我同其他人講小兒情況, 當時, 包括我, 鄰居, 同學媽咪, 學校老師, 朋友, 都認為小兒只是言語差, 又無固執行為, 又無情緒問題, 所以當年我也不太放上心, 只是搵左ST比亞仔, 直到佢上K1, 我已開始覺得有唔掂, 個心已經有??, 因為去到K1, 其他人能力己爬升上去, 點解小兒好以無進步?一直到K1下學期, 我自己打去CAC要求再評估, 先知佢進度好慢, 當時心理學家問我轉唔轉S位, 佢話唔轉, 以小兒能力上K2係一定追唔到, 所以博一博, 轉去S位, 當時先察覺到嚴重性, 所以S位果兩年, 我係全天侯同佢訓練, 想起也好險, 如當時我沒有理佢, 由佢一直讀上去, 佢可能要去特殊小學.
不過, 至今我也後悔當年未能早些去做訓練, 如當年我可早些正視問題, 可能今年小兒也無須重讀K3
作者: apple~y 時間: 12-1-3 12:36
本帖最後由 apple~y 於 12-1-3 12:36 編輯
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我仔仔情況都有D似你小朋友
當年2age幾未有語言就巳經開始番私人s位
當時治療師,老師,cac醫生話係發展遲緩
唔係自閉症,無固執,重覆行為, 又無情緒問題
當時評估0左只係delay 6個月
情況不太差,當時都有keep住番私人s位,番到k1開學
到k1開學已開始有單字,私人s位老師都話小朋友唔太差
比信心我,可惜之後係幼稚園情況都同你差不多,無什麼進步
仲有玩眼問題,又不太表達自己,有要求只係大叫
我唔明到今時今日4age幾,雖然都係講單字,但講到單字量都好多
但去到表達自己時都只係叫,大叫
一唔喜歡就大叫,發脾氣無語言就話唔識表達
識講又唔講,單字表達都好呀,我要求其實好低
我做媽媽有時都要估他想點,好辛苦好痛苦
估中0左,就要求他講0左先比
次次都係0甘,但係教來教去都係叫,
0甘情況都要入政府s位,訓練我都跟到好足,各方進步得好好
可惜表達方便都仲係大叫,好無奈,
我都好怕同他出街,一不滿意又大叫
我真係估唔到2年後情況都係0甘差
都唔知到5age會點
作者: overcomer 時間: 12-1-3 14:02
apply y, 我諗這情形要用ABA的方法，用可接受的行為（如舉手)，代替不好的行為(大叫）。每次他要引人注意，就要他舉手。如做到，就獎勵。仍大叫，就罰或扣獎。細節可請教專業人事
作者: yaniolee 時間: 12-1-3 14:09
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Shirley請問你是在那裡做冶療的?可否pm 我? Thanks
作者: Capricorn2521 時間: 12-1-3 14:36
回復 apple~y 的帖子
apply~y：除了aba，都要留意吓自己的反應。以我自己的經驗，亞仔好心急，有時不如意時會ee 我我(以前都有叫)，佢地個腦快過把口，見你好緊快，佢地下次又用同一方法，快d攞倒你嘅注意。後來我開始冷靜，不慌不忙地問佢係吾係乜乜呀? 我發覺情況係有改善。現在亞仔嘅眼神接觸都ok，我開始多用手勢及表情去指示佢要做嘅野，連老師都叫我要咁做。吾知情況同吾同你一樣，努力呀!
作者: overcomer 時間: 12-1-3 16:00
這也是reinforcement的方法吧。大叫就得不到他需要的注意，用正確的方法，有好的行為，才注意及獎他。初時要忍受一下他的大叫聲，但當他知道大叫會冇人去關注他和得到要的東西，就減少大叫，慢慢就不叫了。
作者: overcomer 時間: 12-1-3 16:36
他大叫時就不理他，不要去氹，無癮就不叫了。
作者: Capricorn2521 時間: 12-1-4 09:31
回復 overcomer 的帖子
謝謝補充。對，當解釋了幾次之後，確定小朋友明白了。如果之後都仲係用不合當的方法，就吾好理佢。
作者: apple~y 時間: 12-1-4 11:44
多謝大家意見,這點係小朋友最難攪地方
最怕出街大叫,比周圍人眼望望,
比人以為我係怪獸家長就晒個仔,新年就快到
都怕比親戚見到
再努力改善啦
thanks
作者: momomo0303 時間: 12-1-5 15:59
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作者: 陳爸爸 時間: 12-1-6 00:19
看見咁多bk parent 回應, 可以知道每個父母都係會盡最大努力同不計成本去幫助自己的子女, 絕對係香港精神, 亦係現今小朋友的福氣!
小兒今個月都開始接受每天3小時的密集訓練, 希望半年後的CAC評估能有明顯的進步, 不過明天都會進行另一針灸治療，我覺得如果硬件無提升, 即使有密集訓練進展都未必如心中所期望, 就正如用部10年前的PC同CPU, 即使install Window 7 都只會拖死部機一樣, 即使upgrade唔到最新的CPU, 都希望upgrade到個PC可run 都Window 7，最多run慢啲但又唔會死機 吖....
作者: powersuit 時間: 12-1-6 09:23
my son try 針灸 once per week, i do think it is useful.
作者: myson727 時間: 12-1-6 09:57
回復 陳爸爸 的帖子
個CPU比喻好"正"
CPU行得慢，未必關CPU事，可能中左"電腦病毒"，如果清除左D"阻塞"，部PC行Win7都無問題，好似最近亞仔學校派番D作文，分分都有七十幾分，有些老師還比個"優異"印仔，睇完亞仔的作文及老師的評語，我自已都估唔倒。
作者: 陳爸爸 時間: 12-1-6 23:49
Hi myson727,
好高興你阿仔能夠有咁大的進步, 我都好希望我個仔嘅CPU能夠升到頻, 今日同阿仔去咗灣仔張醫師處開新症, 需然未知阿仔受針後的效果如何, 我覺得佢好有heart亦都好詳細又不厭其煩咁解釋佢既理論同埋落針的位置同對應腦的那區和相關的作用，我和太太都有信心會幫到阿仔, 希望做完療程後下佢真係可以升到頻啦!
作者: autunmbb 時間: 12-1-8 10:25
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加油～～～
作者: myson727 時間: 12-1-10 11:00
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Hi 陳爸爸:
除生物療法外，上年暑假我都帶亞仔去做針灸，做左十幾次，效果幾好，個人定左醒左。
其實兩年前(7yrs)還被評為"弱能級語言能力"。
作者: 陳爸爸 時間: 12-1-10 19:13
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HI myson727,
really? where to take acupuncture? Wanchai as well?
作者: myson727 時間: 12-1-11 10:42
回復 陳爸爸 的帖子
我係中X大學中醫部，有位林醫師幫我仔針，當時我仔已做左生物療法差不多1.5年，試下中西合壁。
作者: Chaochao 時間: 12-1-11 17:34
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作者: 陳爸爸 時間: 12-1-13 22:35
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Hi myson727,
you are the 1st one to take acupuncture at CUHK, any comment of the effect? do u think it help much?
作者: myson727 時間: 12-1-16 14:21
回復 陳爸爸 的帖子
我相信我吾米第一個帶小朋友去CUHK針，因我都見有其他家長帶小朋友去針，後期我直接帶個仔去醫師的醫館覆診，因CUHK都好多人book，開學就停左，共做左14次，試下中西合壁，個人定左及醒左D。
作者: Chaochao 時間: 12-1-16 16:18
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作者: myson727 時間: 12-1-17 23:14
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Hi Chaochao,
我仔食藥丸DMSA排重金屬,隔日食一粒,都排左1.5年了, 暫時見他無甚麽,醫生會定期抽血驗肝功能,check住放心D.
其實排重金屬只是其中一部份, 還有腸痰, 食物敏感, 身陳代謝系統.......問題要處理
作者: Chaochao 時間: 12-1-18 14:55
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作者: myson727 時間: 12-1-18 16:32
回復 Chaochao 的帖子
DMSA：會同時把重金屬及一些有用的礦物質如鋅也跟著排掉。 DMSA 必須在空腹時服用，服用後45分鐘內不得吃東西。DMSA 有減少白血球的副作用，可能造成 yeast 惡化，在感冒或有其他感染時最好停用，有產品NEUTROPHIL PLUS 據說可以減少這種副作用。有些人服用後會有多尿的副作用。
(copy from: http://www.autism.hk/asd-biomedical.htm)
作者: 陳爸爸 時間: 12-1-22 23:39
前天同阿仔往張醫師去針時, 見到隔離的小朋友都針緊, 不過我觀察那小孩睇電視同說話的反應都好正常, 八卦的我都不禁問問他爸爸因乜而針, 原來又係呢家(自傾), 仲要係Twins....連同細孖都一樣, 聽到我真係好同情他, 我一個都覺好吃力, 可以想像同時有兩個係幾徬徨...可幸的是, 大的病徵比較輕微, 那爸爸話針左more than 1個treatment (48為1個treatment)後已好好多大部分已追返, 實在恭喜他, 希望佢細孖都早日追返哂啦, 我同阿仔都一起向此目標努力!
聽呢位爸爸講, 初期針左幾個月都無乜好明顯改善, 但係之後會特然間啲嘢(進步)好像"爆"出黎咁,好似各方面都特然間明顯改善...我聽到都覺得好神奇, 我都希望阿仔快啲"爆"出黎就好啦! 不過阿仔現在先針得5次....唔知要等幾次先"爆"出黎呢?
作者: BKVIP 時間: 12-1-26 12:06
請問可以俾張ec 資料我嗎？我都想幫我仔試下，佢依家已經3歲，仲係不停跟人講嘢，我想試下針灸，請問小朋友痛唔痛架？每次要針几耐呢？
作者: HgI 時間: 12-1-26 12:27
回復 myson727 的帖子
看到回覆帖子上的相關網頁, 打開網頁後看到有關 Andy Cutler 的DMSA 及 Alpha Lipoic Acid 之排水銀方法的中文資料, 謝謝 myson727
作者: FatCatCat 時間: 12-1-27 16:47
我個仔，約一歲半左右 (2007)，發覺他行為同其他小朋友有大不同，開始特別留意！
例如：喜歡數目字、英文字、排車、玩開門關門、反轉玩具車車輪玩之類等。(但有語言、欠缺眼神交流、固執。)
因有BB關係，足兩歲 (2007)，我安排就讀幼兒班，並通知校長、老師，他的行為有異、及已自行安排到評估中心，接受評估。評估為 (兩歲四個月，2008)：懷疑自閉症傾向，或亞氏保加症。
期間，本人一直有安排訓練給小兒，如：言語治療、感覺統合治療、社交小組、幼兒訓練、私人上門幼兒訓練等。
隨即向社會福利署，排期申請兼收位 (I 位)，於2008年9月至2010年8月 (兩年)，入讀K1-K2 (I 位)。
再於2010 年初，因搬遷理由，向社會福利署申請由兼收位 (I 位)轉為早期訓練位 (E位)。並於2010年9月就讀早期訓練位 (E位)及在另一所普通幼稚園重讀K2。
2011年6月，到兒童精神科覆診時，再被評為亞氏保加症。
2011年7月，因在早期訓練E位，各表現良好，提早完結課程。畢業前，還進行一次智能評估，結果為12X分。
2011年9月，只就讀普通幼稚園K3。並無使用其他社會支援。(而早前安排的訓練，只删減至私人上門幼兒訓練。)
其實，經過這幾年訓練，他大致上與其他小朋友無異，甚至他K3的班主任也察覺不到。
我都好開心，可以喺度分享。大家一齊努力，共勉之。
作者: angels'mom 時間: 12-1-30 23:05
FatCatCat 發表於 12-1-27 16:47
我個仔，約一歲半左右 (2007)，發覺他行為同其他小朋友有大不同，開始特別留意！
例如：喜歡數目字、英文字 ...
很替你高興，亦多謝分享。
作者: myson727 時間: 12-2-1 11:18
回復 HgI 的帖子
昨日，幫亞仔抽血驗"營養- 脂肪酸及氨基酸"及再驗屎，有report再分享。
作者: reb818 時間: 12-2-4 10:58
ABA 3 days a week, weekly OT (including SI) , ST, PST, Acupuncture, Social Group, Attention Class, home training and playing in the park. These are what we provided to my daughter since she was 2 yr. 7 months. We consulted with our doctor from time to time to see if our training was on the right track.
She was a borderline ASD case at 2 yr. 7 months. It has been 1.5 years now, and she had great improvement. She goes to a normal kindergarten, but is little bit behind. So we still need to think of ways to reduce her gap between normal children.
Some believe bio-medical really helps.
Add oil! There is hope!
作者: reb818 時間: 12-2-4 23:00
回復 FatCatCat 的帖子
替你高興! 可否介紹你的私人上門幼兒訓練? 感謝!
作者: 陳爸爸 時間: 12-2-5 22:38
FatCatCat 發表於 12-1-27 16:47
我個仔，約一歲半左右 (2007)，發覺他行為同其他小朋友有大不同，開始特別留意！
例如：喜歡數目字、英文字 ...
你的仔仔情況真使人十分鼓舞! 可否pm你的私人上門幼兒訓練導師contact 我呢? 價錢係幾多呢?
我仔都有一星期一次上門ST, 一星期五日每次三個鐘針對A仔的私人S位, 再一星期兩次針灸, 同將會在逢星期六的社交小組, 同家居訓練, 不過阿仔在家特別扭計, 好唔合作, 好想睇下有冇好有經驗又有教開A仔的私人上門幼兒訓練導師可以在家教授, 希望可令阿仔的進度加快就好了
作者: 陳爸爸 時間: 12-2-5 22:44
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Hi reb818, which acupuncture did u try? Do u think a great help or big difference before & after treatment?
作者: reb818 時間: 12-2-6 01:03
In our case, the difference is obvious in the first few months, then the improvement becomes steady.
First 7 months at Baptist University, Dr. 尤傳香, twice weekly. In the first few months, my daughter had obvious improvement in awareness, response, interaction and pro-activeness. The treatment remained at 13 needles on the head all the time. The effect was not so noticeble in the last few months. Since Baptist is too far for me, I switched to Wanchai, Dr. Cheung (same as you).
At Dr. Cheung, she applies more needles, and my daughter improved a lot in the initial months again. It has been 4 months now. She does not need to go twice a week anymore. She only goes once a week, and I did not notice any regression. The improvement has been steady. Her interaction and social skills are much better.
Dr. Cheung - it has been 4 months now. She applies needles
作者: 陳爸爸 時間: 12-2-6 09:59
回復 reb818 的帖子
Thanks reb818, comparing Dr 尤 & Dr Cheung, which one you think the improvement is much noticable?
Besides, how you think about ABA training? Your son attend 3 days but how many hrs for each section? Do u think it can much improve your son social skill & response? Other than 3 hrs a day intensive training at private "s" class, I am considering which give my son ABA training as well
Can u pm me your ABA training info? Thanks a lot!
作者: reb818 時間: 12-2-6 16:11
Both doctors are good. For us Dr. 尤 gave my daughter a good start. At Dr. Cheung, the improvement comes faster. Maybe it's because my daughter turned 4 this Sept. At this age, expressive language and conversation exchange are much better.
ABA - 3 days each week, 3 hours each day. This is the minimum hours. As it is one-on-one teaching, the effectiveness is higher than group teaching. You will notice the improvement quickly. The program is also tailor-made for your child. First they train the child to follow instructions and to comply to the therapist (compliance). After this has been achieved, many things can be taught. Parents can use this method at home, and teaching will become easier. For teaching response, it is very effective.
For social skills, ABA has its limitations, as it is one-on-one training with an adult. If you go to the centre, they can arrange some programs to interact with other kids, but it is still limited. They will teach your child social language, which is what they need in playing with other kids.
The downside of ABA is if the child cannot generalize (應用) what was learned, it will become 死記. Also if the child's cognitive level is not high, improvement will be seen, but don't expect miracles to happen. ABA will break down the tasks in small steps and teach your child step by step. The child will learn much easier that way.
作者: 陳爸爸 時間: 12-2-7 23:34
回復 reb818 的帖子
Hi reb818, Thanks a lot for your valuable info!
Got your pm info as well, thks!
作者: 陳爸爸 時間: 12-2-8 00:00
近這星期覺得阿仔好似醒左, 反應快左, 好似打左支強心針,
但是今日唔知點解佢玩眼的自我刺激行為(如向上向側反白眼, 玩門並追視門的開合, 來回望住TV櫃角跑來跑去等) 又係多左, 心裡好擔心....
一有無聊的時間就玩呢啲, 是否一定唔可以令佢有無聊的時間呢? 好想有多啲時間教佢令佢無法感到無聊, 但始終要工作, 真係好難做到....到底呢啲行為大個係米會真的消失呢? 心裡真係每日有太多問號......
作者: reb818 時間: 12-2-8 01:05
You can consult your OT. These are sensory integration related problems. Jumping on the trampoline helps.
I have gone through what you are going through now. I remember I felt very lost at first, too. Just consult all the therapists - OT, ST, PST. Ask them everything you don't understand and ask them the solution. Read lots of books, research on the Internet, attend seminars and talk to experienced parents.
I consult with a doctor from time to time, and she will evaluate if our training was on the right track. I think that helped me a lot mentally, as I knew I had a coach and that I am doing the right thing for my daughter.
Cheer up!
作者: mandycmh 時間: 12-2-8 19:02 標題: 回覆：hcily 的帖子
很認同你觀點，只要他將來有能力照顧自己，他是可以用自己方式去生活。但人都是不可離群獨處（小兒k1讀緊i位，但無同小朋友有真正交流只是跟隨小朋友尾一起跑），我現在想找一些社交班給他這方面的支援！
作者: Chaochao 時間: 12-2-9 12:22
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作者: Chaochao 時間: 12-2-9 12:33
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作者: pinkdoll 時間: 12-2-10 23:47
本帖最後由 pinkdoll 於 12-2-10 23:48 編輯
陳爸爸 發表於 12-2-8 00:00
近這星期覺得阿仔好似醒左, 反應快左, 好似打左支強心針,
但是今日唔知點解佢玩眼的自我刺激行為(如向上向 ...
我認為是感覺統合的問題, 感覺統合分7 種: 前庭, 本體, 觸角, 聽覺, 嗅覺, 味覺, 視覺. 其實大部份a仔都有不同程度的感覺統合問題, 例如: 跑來跑去是前庭感覺失調的表現. 請留意 "感覺統合有問題, 是會引起行為及情緒問題".
無聊時a仔是會做一些冇意義的自我刺激行為, 你可以用有意義的事代替冇意義的自我刺激行為, 例如跳彈床.
其實, 處理小朋友的感覺統合是最首要的, 因為你不會知道孩子什麼時候會"感到無聊", 在家無所事事的確可以是無聊, 所以做很多自我刺激行為, 但在學校上課, 他都可以覺得是無聊事, 然後, 自己在課堂上做很多自我刺激行為架. 所以, 幫小朋友搞好感統, 令他們懂得在適當的時候做適當的事才是上策.
我個仔, 讀緊n1, 上堂覺得無聊(e.g. 唔明老師講乜), 自己就會跑來跑去又或者坐係到自己開合手, 老師叫得佢坐係到幾多次呀? 治標唔治本. 後來, 去做了感統, 就少了很多這個情況. 況且, 感統不良是會影響小朋友認知發展的.
講多少少, 有啲小朋友感統有事, 係會聽唔到老師講嘢, 只會聽到冷氣機聲, 咁佢會成日覺得好嘈, 引致情緒唔好, 可能會打人, 咬人, 我上面有提到"感覺統合有問題, 是會引起行為及情緒問題". 咁你想下, 你應該日日教小朋友唔好咬人, 打人? 定係應該處理小朋友的感覺統合問題先呢?
作者: 陳爸爸 時間: 12-2-11 00:50
Totally agreed, 其實現在阿仔都每星期有幾日感統訓練同帶去公園玩, 不過唔知邊種在家居可同佢玩而又能針對性咁改善佢玩眼的習慣的感統遊戲呢?
各位有冇好介紹?
作者: pinkdoll 時間: 12-2-11 01:08
本帖最後由 pinkdoll 於 12-2-13 15:05 編輯
陳爸爸 發表於 12-2-11 00:50
Totally agreed, 其實現在阿仔都每星期有幾日感統訓練同帶去公園玩, 不過唔知邊種在家居可同佢玩而又能針對 ...
每星期有幾日感統訓練 <------- 既然已經有幾日的感統訓練, 感統活動內容應該是針對你兒子的問題而設. 你不如問下感統治療師有什麼活動可以在家中進行.
如果你經濟許可, 可以買彈床, fitball, 隊道等等這些東西放在家中給兒子玩.
你可以買一本叫活出彩虹{努力試]遊戲寶典來參考一下, 另外, 去上一個叫努力試課程, 會對你有幫助.
http://www.lp.org.hk/
作者: Keibabi 時間: 12-2-14 12:01
myson727 發表於 11-12-27 23:30
好同意要update下自己,特別留意多D外國網站,舊有觀念可能過時了.
好似我仔接受左"生物療法" Bio-medical ...
Hi myson727,
可唔可以講吓有關你小朋友接受"生物療法"嘅過程, 同埋喺邊度做緊, 因為我小朋友都岩岩睇咗醫生, 仲考慮緊接唔接受生物療法, 好想吸取多d資料, 謝謝!
作者: 陳爸爸 時間: 12-2-18 01:12
請問有冇邊位試過RDI (人際関係介入)呢? 可否分享下啲成效呀?
Thanks!
作者: apple~y 時間: 12-2-18 15:08
陳爸爸
之前見你留言去灣仔針灸,你小朋友針到第幾次
有進步嗎??
我小朋友都剛剛開始試針灸,針0左第3次
不過我小朋友巳經4age幾,效果可能無你小朋友0甘好
針0左3次聽老師講(我仔仔番s位,無同老師提過去針灸),
話呢排仔仔醒0左,理解,講0野好0左
唔知有無關係,當然平時都有keep住做訓練
作者: kaka1128 時間: 12-2-19 13:44
FatCatCat 發表於 12-1-27 16:47
我個仔，約一歲半左右 (2007)，發覺他行為同其他小朋友有大不同，開始特別留意！
例如：喜歡數目字、英文字 ...
您好, FatCatCat,
我個囝同你個小朋友一樣, <<喜歡數目字、英文字、排車、玩開門關門、反轉玩具車車輪玩>>
不過, 我個囝情緒起伏好勁, eg. 宜家可以好開心, 下一秒唔知咩原因會大發脾氣, 有時會用頭撞wall/或者撞落我度.
宜家肯定既係佢言語發展遲緩, 做緊言語治療, 情緒亦改善左.
我地下星期要去CAC見醫生啦, 希望問題不大啦
作者: 陳爸爸 時間: 12-2-20 00:16
回復 apple~y 的帖子
Hi apply~y,
針左十一次了, 進步係有的接收指示的能力明顯好左, 但眼神接觸仍然係弱, 同玩眼的行為如一路跑一路斜視枱邊或櫃的直紋, 開関門等仍好多.....仍然覺得佢仲未番來.....
作者: 陳爸爸 時間: 12-2-20 00:18
陳爸爸 發表於 12-2-20 00:16
回復 apple~y 的帖子
Hi apply~y,
作者: myson727 時間: 12-2-20 14:05
回復 Keibabi 的帖子
Hi Keibabi,
因之前驗的報告未返齊，睇完報告再長細分享。
近期觀察一個大的突破: 之前數學科測驗及考試卷中的"文字題"，通常大部份都錯，但最近數學科測驗卷的"文字題"，全部答對。
如果生物療法對你小朋友有效的話，他/她會"慢慢地漸漸改變"。
作者: xixi1218 時間: 12-3-14 11:33
關於生物療法，我想問下，如果在過敏測試裏面對食物無任何敏感，戒口是否就沒太大作用？
作者: myson727 時間: 12-3-14 15:02
本帖最後由 myson727 於 12-3-14 15:07 編輯
回復 xixi1218 的帖子
我估計:
如驗左無食物敏感(90種食物)，那90種食物不用戎。
只需戎牛奶及小麥(即GFCF)，因牛奶及小麥引起是腸道的問題，有別於食物敏感，我仔開始時戎牛奶及小麥，發夢發呆都會漸漸減少。
作者: Yanbuma 時間: 12-3-25 12:48
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作者: Yanbuma 時間: 12-3-25 12:49
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作者: 陳爸爸 時間: 12-3-25 23:21
Yanbuma 發表於 12-3-25 12:48
喺PAGE 1見到大家ARGUE有關自閉症能否"痊癒", 我希望以我所認識的幫到大家 (因為其實大家都冇錯, 亦冇人唔U ...
請問你是用邊種治療方法治療自閉的小孩呢? 可否說說你的意見?
作者: Yanbuma 時間: 12-3-26 15:15 標題: 回覆：自閉症 - 三歲前確診及治療而最後可醫好的請進
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作者: 陳爸爸 時間: 12-3-28 01:45
Yanbuma 發表於 12-3-26 15:15
我是做aba的。
當然我會覺得aba是最有效的方法，但我知道要說服為人父母的不要試aba以外的療法是不可能，因 ...
作者: minna-no 時間: 12-3-28 12:19
I want to known which centre provide ABA training, tks!
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