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標題: 這裹有沒有平腦症的小朋友家長？ [打印本頁]

作者: mok 時間: 07-8-7 22:52 標題: 這裹有沒有平腦症的小朋友家長？

我認識個平腦症的小朋友。這裹有沒有平腦症的小朋友家長？

[ 本文章最後由 mok 於 07-8-9 13:22 編輯 ]

作者: bbchuchu 時間: 07-8-7 22:53

I don't know what is 平腦症

作者: mok 時間: 07-8-9 12:00 標題: lissencephaly

原文章由 bbchuchu 於 07-8-7 22:53 發表
I don't know what is 平腦症

我理解是染色体的障礙。大腦表面沒有皺紋。影響身體的効能。
http://www.uhealthy.com/chinese/faq/aq/chi-004.htm

英文網頁寫得詳細Ｄ。
　http://www.lissencephaly.org/about/lissen.htm#what

[ 本文章最後由 mok 於 07-8-9 13:21 編輯 ]

作者: mok 時間: 07-8-20 14:12 標題: lissencephaly

issencephaly has some different types .my friend's son is belong to Miller-Dieker syndrome.

[ 本文章最後由 mok 於 07-8-20 14:16 編輯 ]

作者: mok 時間: 07-9-7 21:43 標題: issencephaly ~Miller-Dieker

我認識個平腦症(issencephaly)的小朋友。這裹有沒有平腦症的小朋友家長？

作者: crybeebee 時間: 07-9-13 19:33

I know there is a 平腦症的小朋友 at PWH. Do you wanna contact her?

作者: mok 時間: 07-9-14 17:12 標題: re

hi crybeebee,thank you for you reply.yes ,i want to contact her.my friend's child is also at pwh. pls check pm.

原文章由 crybeebee 於 07-9-13 19:33 硐表
I know there is a 平腦症的小朋友 at PWH. Do you wanna contact her?

作者: crybeebee 時間: 07-9-14 20:05

pls check pm

作者: mok 時間: 07-9-14 23:11 標題: thanks a lot

hi crybeebee, pls check e-mail.

[ 本文章最後由 mok 於 07-9-14 23:19 編輯 ]

作者: crybeebee 時間: 07-9-15 01:45

Pls check e-mail.

Her son is around 20-24 months old. He has serious seizures problems. I know the mom because we started the ketogenic diet at the same time.

作者: crybeebee 時間: 07-9-18 20:59

Hi mok,

Not sure whether you have received my e-mail.

Just wanna let you know that I will get back to you once I got Ling's no.

作者: mok 時間: 07-9-18 23:25 標題: re

hi crybeebee;

i've recieved your e-mail. thanks a lot again~.

作者: crybeebee 時間: 07-10-20 22:32

Hi mok,

Did u receive call from the mother? it seems that the mother doesn't wanna talk about his son sometimes.

作者: 天恩媽媽 時間: 07-10-22 23:59 標題: with thanks

hi crybeebee, pls check pm.thanks!

作者: 天恩媽媽 時間: 07-10-25 15:42 標題: to crybeebee

hi crybeebee, pls check pm.thanks!

作者: crybeebee 時間: 07-10-30 21:17

Hi, sorry for son just started the second course of HBOT and so I don't have much time to log on the web.

Pls check pm.

作者: 天恩媽媽 時間: 07-11-1 19:19 標題: no problem

no problem la~.pls check pm,thanks.

原文章由 crybeebee 於 07-10-30 21:17 硐表
Hi, sorry for son just started the second course of HBOT and so I don't have much time to log on the web.

Pls check pm.

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